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State Assembly Approves Hayashi Legislation To Protect Consumers From Insurance Policy-Rescission
The California State Assembly has approved legislation by Assemblywoman Mary Hayashi (D-Hayward) that would prevent health plans and insurers from canceling a health insurance policy 18 months after the policy was issued. Assembly Bill 108 (Hayashi) passed on a 48-28 vote.
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Kansas Becomes Central Battleground In Abortion-Rights Debate
Kansas has become "perhaps the fiercest battleground" in the abortion-rights debate with mass protests, prosecutions, lawsuits and the recent murder of abortion provider George Tiller, the AP/Washington Post reports. Kansas State University political scientist Joe Aistrup said, "There"s a very prominent vein in Kansas politics that tends toward moral righteousness." He said that this contributes to that unending debate and has produced extremists on both sides of the issue in the state.Peter Brownlie, CEO of Planned Parenthood of Kansas and Mid-Missouri, said that the majority of those who maintain the intense debate on abortion rights are political leaders. "There is a very clear and growing gap between the general public and the political leaders who are committed to this being such a constant and volatile issue," he said. Brownlie added that on issues relating to abortion, sex education and family planning, "Kansans" views are not markedly different from most Americans, but there are political forces at work, some of them well beyond the state borders."The Post reports that Kansas is different than most states where either supporters or foes of abortion rights dominate. According to the AP/Post, Kansas often sways between having key lawmakers who support abortion rights and those who oppose them. For example, a Republican-dominated Legislature over the past six years passed several bills to restrict abortion access, but much of the legislation was vetoed by former Gov. Kathleen Sebelius (D). The result has triggered frustration in groups opposing abortion rights, and they continue to feed widespread opposition to abortion in the state, the AP/Post reports.According to Burdett Loomis, a University of Kansas political science professor, there even is a split among Kansas Republicans in regard to abortion rights, as some Republicans in the state are evangelical Christians who oppose abortion rights, while others are moderates who support such rights. He said the split "might pop out in gun laws, home schooling, evolution, but it starts and stops with abortion" (Crary/Hanna, AP/Washington Post, 6/3).Wall Street Journal Examines Abortions Later in PregnancyIn related news, the Wall Street Journal on Thursday examined how Tiller"s clinic in Kansas became a battleground in the abortion-rights debate particularly because some of his patients were in the second and third trimesters of pregnancy. According to the Journal, even though the subject of abortion later in pregnancy is the of "a deep cultural divide," both sides agree that it is "anguishing." Fewer than 1% of all abortions in the U.S. are performed in the second or third trimesters, and most states prohibit abortions late in pregnancy but include exceptions for the woman"s life and health.The Journal reports that abortion procedures performed later in pregnancy often carry increased health risks, are more expensive and are emotional. The Guttmacher Institute reports that 8.9 maternal deaths occur during every 100,000 abortions performed later in pregnancy, compared with 7.1 deaths per 100,000 births. The article also profiled women who chose to undergo abortions later in pregnancy at Tiller"s clinic, as well as arguments from abortion-rights opponents (Simon, Wall Street Journal, 6/4).
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Scientists Discover Possible Link Between Missing DNA And Neuroblastoma, A Deadly Childhood Cancer
Discovering for the first time that copy number variation or CNV, where a strip of DNA is duplicated or missing, may
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National Organization For Rare Disorders To Honor Rare Disease Pioneers

The National Organization for Rare Disorders (NORD) will honor a senior U.S. Senator, a top Administration official, a cutting-edge television network, and several pioneering companies developing treatments for rare diseases at the 2009 NORD Gala at the National Press Club in Washington, DC, on Thursday, May 14. The NORD Gala is an annual event at which researchers and others are honored for significant achievements to improve the lives of people with rare diseases. NORD represents the nearly 30 million Americans who have rare diseases. "We are honored to have this opportunity to pay tribute to pioneers in public policy, the sciences, and health-related education and awareness," NORD President and CEO Peter L. Saltonstall said. "These individuals and companies have demonstrated compassion and concern for what was once a forgotten community-people who have diseases affecting small patient populations. We are happy to honor them for accomplishments that have literally saved lives." In the United States, a disease is considered rare if it affects fewer than 200,000 Americans. According to the National Institutes of Health (NIH), there are between 6,000 and 7,000 such diseases affecting nearly 30 million Americans. Many rare diseases are serious, life-threatening and chronic. The 2009 NORD Gala honorees are: - Senator Edward Kennedy for lifetime achievement in health promotion leadership and for specific accomplishments on behalf of populations that are underserved by our nation"s healthcare system - Social Security Commissioner Michael J. Astrue, J.D., for his focus on reducing the disability backlog and improving service to the public - Discovery Health, for educational programming that helps the public understand problems such as difficulty getting an accurate diagnosis that accompany having a rare disease - John I. Gallin, M.D., Director of the National Institutes of Health Clinical Center, for contributions as an excellent administrator, a caring physician, and a pioneering researcher - Bayer HealthCare Pharmaceuticals and Onyx Pharmaceuticals, for developing and bringing to market Nexavar®, a treatment option for patients with a form of liver cancer known as hepatocellular carcinoma, when the cancer is inoperable - Baxter International Inc., for developing Ceprotin® for patients with life-threatening blood-clotting complications related to severe congenital protein C deficiency - BioMarin Pharmaceutical, Inc., for developing Kuvan®, the first specific drug therapy for phenylketonuria (PKU) - Biovail Corporation, for making available to the patient community Xenazine®, the first treatment to be approved by the Food and Drug Administration (FDA) for the jerky movements (chorea) associated with Huntington"s disease - CSL Behring, for developing and bringing to market RiaSTAP™, the first and only treatment for acute bleeding episodes in patients with congenital fibrinogen deficiency, an extremely rare, potentially life-threatening bleeding disorder - Eisai Inc., for bringing to the patient community Banzel™, a much-needed treatment alternative for seizures linked to Lennox-Gastaut syndrome, a severe form of childhood epilepsy - GTC Biotherapeutics, Inc., for developing ATryn®, an anticoagulant to prevent blood clots in people with a rare disease known as hereditary antithrombin (AT) deficiency - Regeneron Pharmaceuticals, Inc., for developing Arcalyst®, the only approved treatment for people with a recently identified group of rare, inherited, autoinflammatory disorders known as CAPS - Talecris Biotherapeutics, Inc., for developing Gamunex®, the first therapy approved for treating people with chronic inflammatory demyelinating polyneuropathy - ViroPharma, Inc., for making available to patients Cinryze®, the first drug approved by FDA to prevent swelling that occurs in various body systems as a result of a disease known as hereditary angioedema (HAE) NORD will also present its first Abbey S. Meyers Leadership Award to the Huntington"s Disease Society of America. The award was established in honor of NORD"s founding president, Abbey Meyers. In addition, Patty Delaney, an FDA staff member who was a strong advocate for patients and who died last year, will be honored posthumously. National Organization for Rare Disorders


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